Your stories will not be used or shared without your consent. You may click here to read the electronic consent form for more information about the study and how your data will be used and safeguarded.

After you record your story, you will have the right to choose whether and how we may use your story in our study. Click here to review the media release form which outlines several options. 

Unless you permit us to do so with a media release form, raw study data (that is, unedited audio and video recordings made through this website) will only be accessible to Dr. Csilla Kalocsai (PI), Dr. Oshan Fernando (Research Coordinator) and Kyla Simms (Research Analyst). 

To make sure Indigenous and Black communities have control over their own data, the study team has created two special groups to manage this. These groups are called the Black Data Governance Table and the Indigenous Data Governance Table. Each group will look after the data from Black and Indigenous participants.

Data that is collected from participants who culturally identify as Indigenous will be managed in accordance with the First Nations principles of Ownership, Control, Access, and Possession (OCAP ® ). The Indigenous Data Governance Table is chaired by Emmily Simmonds.

Data that is collected from participants who culturally identify as Black will be managed in accordance with the principles outlined in The Black Health Equity Group’s Engagement, Governance, Access and Protection (EGAP) framework. The Black Data Governance Table is chaired by Christopher Townsend. 

Data from participants who do not identify as Black and/or Indigenous will be managed in keeping with the framework provided by Sunnybrook’s Research Ethics Board. If you have any questions or concerns about how your data will be managed please contact Oshan Fernando at oshan.fernando@sunnybrook.ca or Kyla Simms at kyla.simms@sri.utoronto.ca